On March 8th, after 9 days in the hospital it became glaringly clear to everyone that Kevin’s body was failing him. His diaphragm had stopped working, causing his lungs to continue to fill with fluid. He had fought the good fight and now was ready to WIN his battle with ALS and steal the defeat from the hands of our enemy. I told his doctor that we would discuss Kevin’s options in the morning, and that one more night of sedation would be ok. He agreed and we would meet again in the morning.
On March 9th, I met the doctor at Kevin’s ICU room and we lifted the sedation and had the hardest conversation I would ever have with my husband. But his smile and his joy could not be contained. He was ready. He looked at me with those big blue eyes and said, “Let me go. I am ready and I am tired.” Of course, I would do what he asked. Now to set in motion what he dreamed. I knew what he wanted, we had discussed it.
Very early in this journey, we were assured that he would not be healed on this earth and we were ok with that. We knew Kevin’s purpose and God’s will for Kevin’s life. We picked up that cross and ran with it. How many times in your life will you know for certain that you are right in the center of GOD’s will for your life? We knew and we were so determined that we would continue on this road with joy and peace.
One of the things we did was plan Kevin’s last days and his funeral. (The fart machine was a late entry in the planning, but a funny one.) He knew exactly who he wanted to be there, and how he wanted everything to happen. I was the one who would make it happen according to plan, and with my trusty phone and lots of tears, I did what he asked. I sat on the porch at the hospital and made those phone calls and gathered our family. ALL OF OUR FAMILY! Some couldn’t make it, but those who didn’t already knew how he felt about them, and they knew how much he loved them. I missed seeing their faces, but I knew their hearts were with me and Kevin.
I am still in awe of my church family. With one phone call, my Pastor Jacob Aranza made the cabins available for my family coming in from out of town. I knew they would be taken care of by my church, and I was both proud and grateful. There are no greater friends (now family) than my church members. We have walked a hard road together this year, but I wouldn’t want to hold any other hands than yours. My OSC family is the best!
On March 10th, Kevin’s birthday, we CELEBRATED!!! Everyone had arrived but Kyle & Eden, who were still driving. I made a HUGE pot of Gumbo and we fed the whole waiting area, Nurse’s station and all 60 people who showed up to celebrate Kevin! Of course we were loud, we ARE loud. We took over the place, apologetically. We loved and laughed and teased and giggled our way through the day. It was perfect. At the end of the day, I saw the love and joy shining in his eyes and knew we had done the good thing. We gave him permission to leave us, knowing we would be together and loving each other like he loved us.
We went to dinner that night and I had a little freak out, I had to know that I was doing what he wanted. I went back to the hospital and selfishly woke him up and asked him. He rolled his eyes and said “Really, Gina? Do you have to ask me that?” I laid my head on his chest and cried. It really was the only time I questioned what he wanted. And I knew it was foolish, but sometimes I am foolish. I was better after I saw him and talked to him again.
On March 11th, it dawned a beautiful day. I was ready and strong. I felt God’s hand on me and knew HE was with me. I walked into Kevin’s room to see my beautiful, strong husband smiling and flirting with the nurse and blowing kisses to me. I repeated his words to me “Really, Connell????” and he replied, “It is a great day to go home!” I opened the curtains, letting the sun shine into the room. It was a gorgeous, clear Acadiana day. I turned on the Praise Music and welcomed our family into the room. Our beloved doctor, Dr. DeAlvare, walked in and smiled at all of us. He gave us the news that we would start at about 11:30am and in his words, “Kevin, you will be home by noon.” It was on….
We all gathered, family, friends, church family and prayed together, laughed and smiled as we watched him say his farewells. I can’t tell you what was said, or what songs we sang, but I will tell you that it was the most perfect moment of my life. We prayed, and then it would get quiet, someone sang, then we would get quiet. Someone would pray, it would get quiet and out of the quiet, a voice sang a most precious song. Our sweet Alexis Rice sang goodbye to her buddy. I remember thinking, my baby is singing. It didn’t take long. And by 12:15pm, my sweetie flew into the arms of Jesus. He beat ALS. He won the victory and did it with grace and joy and confidence.
It is finished. I watched everyone say goodbye and leave the room. In the end, it was me and his mom. How precious for her. She was there in the beginning and she was there at the end. First breath and last breath. She knew, as Mary did, how precious to see your firstborn complete their mission on this earth. I believe in that moment, she was the most blessed woman on the planet. And I was so glad she was with me in that quiet room, just looking at him and being thankful that he loved us. She was never more beautiful to me than at that moment.
Now we move on. Now the life he lived is over, but the life he planned and hoped for me begins. Without him.
Look for the next part…the silliness of Kevin is exposed….